The month of December

January 28, 2010 Mikayla Love

 Wow! I can’t believe it has been so long since I wrote. November and  December were very busy months for us.

Back in November we met with our Mayor here in Toms River. Mayor Kellahar couldn’t have been more inviting to us. I  received a call from him after he read about Mikaylas Story in the newspaper. We went to town hall to meet with him and discuss Mikaylas situation. I really wanted to get Awareness out there more than anything since NO ONE knows of Craniosynostosis.

Mayor Kellaher was more than willing to help us in anyway. He had Mikaylas story published in three of our newspapers here. Ocean County Gazette, Toms River Times and Asbury Park Press.

Since we were hit with Medical bills we decided to do a fundraiser Benefit to help offset our extreme bills.

I worked countless hours preparing for her benefit and it was a success.

Our Mayor attended and presented Mikayla with a proclamation for Bravery. We had Family, friends and our community attend. We could not have been more thrilled with the outcome.

We also has 10 other Cranio Families attend and it was such a good feeling to know we were not alone. Mikaylas condition has brought us closer to new families who have suffered the same disease.

We had alot of fun and for once we forgot what our painful year has been like. To see Mikayla smile for the day was priceless.

We are  Thankful for all of your generous donations, cards and words of encouragement along our Journey. I hope to look forward to 2010 with this all behind us.

xoxo

Love to you all,

Liz

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